ALS (Amyotrophic Lateral Sclerosis): Letter From a Man with ALS

A Random Letter From a Victim of ALS

By: Fat Lester

The following are the contents of an email that a friend and colleague passed along to me. He is raising money for the Muscular Dystrophy Association (MDA) to help find a cure for ALS (Amyotrophic Lateral Sclerosis).

Out of nowhere (he does not know this man - hence the anonymity - nor does he know how the man obtained his top-secret email address. That said, he found the letter quite the motivational tool to summon his best efforts in attempting to solicit donations from family, friends and social media contacts, and as one of those whom he asked to help spread his message, I was given his permission to publish the contents of the letter he received from an actual ALS victim provided I keep the gentleman's identity private and include no information that could lead to his identity being tied to the substance of the message itself.

Without further adieu, here is the letter minus the greetings and signatures:

Dear Peter,

On January 25, 2012 I was diagnosed with ALS. From that evening on-my life has changed drastically. I have always been a very active person but due to the progression of the disease, my activities are limited. I left work shortly after finding out I have ALS to spend more time with my family and to acquire much needed rest. My symptoms were, and still are, muscle aches/twitches, headaches, stiff neck, noticeable muscle loss in my chest/back, cramps in my legs/feet and general fatigue.

My upper body is my weakest and biggest problem at this time. It is now getting difficult or impossible to do some of my everyday activities because I can barely raise my arms. Shaving, bathing, dressing, getting in and out of the bed are all a challenge and require assistance.

The people at MDA of Greater New Orleans have been a Godsend. They are so helpful and are always willing to help you with any issue you face. The staff at the MDA clinic that I go to every 3 months is also wonderful – they are friendly, knowledgeable professionals that will do anything to help.

I have a very supportive family and close friends that are always there for me no matter what my needs are. My wife and I have met some great friends, other pALS (People Living with ALS) and their wives. We get together often for dinner and other activities and find that these are the most wonderful relationships. We are all dealing with the same struggles, even though we are at different stages with ALS, but understand what each other is going through. This group bond that we have as made a huge difference in our lives.

If it weren’t for organizations like MDA I would not have had the opportunity to meet these pALS and receive the help we need. I know there are more hard situations in the future, but with all the support I have, I will get through it all.

Thank you for supporting the Covington Lock-Up, MDA and my family.

Since we're keeping the author of the message anonymous, there will be no signature or goodbye message included here. That said, if that does not touch upon a soft spot in your heart, one must wonder if you even have one.

That disease (ALS) is among the most debilitating and torturous illnesses in the history of mankind, and my heart goes out to everyone and anyone who has ever suffered from it, God rest their souls.

Amyotrophic Lateral Sclerosis (ALS)

The friend posted a blog about ALS, why he is motivated to help find a cure and why he feels that you and anyone else reading his blog should donate to the MDA Lock-Up event Thursday, May 23 in Covington, Louisiana. The friend will be "arrested" as a "repeat offender" and will need to post "bail" (your donations) in order to be granted release from the makeshift holding cell at the restaurant at which the event is being held.I will ask all readers of this blog though to please consider donating anything you can --- even if its just a single dollar --- to his "bail bond" as finding a cure for ALS is about as good a cause as one could conceive of to financially support.
If you can afford to help out, please do so, and know that his company, EGAN Medical Equipment, will be matching each and every dollar donated up to $1,000.

Unruly Women's Threats, Demands: Criminal Fraud or Postpartum Psychosis?

Crazy Postpartum Moms Make Company Rethink Generous Return Policy

By: Fat Lester

This article began as a comment in response to an article written by Jennifer Moyer about postpartum psychosis.

Reading Ms. Moyer's article left me wondering whether or not a disgusting behavior I've experienced at work far too many times is the product of a sociopathic scam artist engaging in criminal, fraudulent behavior; or a mentally ill woman desperately in need of some help. Prior to reading Moyer's article, I had always presumed that the behavior was the former, never even so much as considering the latter.

I work for a company that sells maternity and postpartum supports (orthopedic undergarments designed to provide physical support to women during and post-pregnancy).

We often receive requests for refunds months after women order a maternity support such as the Prenatal Cradle. The obvious suspicion here is that these women want to have their cake and eat it too, using the product until it is no longer needed, then attempting to return it for a full refund after giving birth.

These women all seem to have one thing in common: a mentality that that they deserve and are entitled to receiving their money back despite our company totally fulfilling our obligation for the initial transaction. It's not like these requests come days or weeks after the orders are placed (we do receive such requests, but these often are eligible for an exchange or refund).

The ones that come months afterward are those to which I am referring. The women will call with a tone-of-voice clearly meant to bully the person on the other end of the line. They threaten everything from writing negative reviews to filing chargeback disputes with their credit card companies (we've yet to lose one when they follow-through on these requests). Each time, it appears as though the woman genuinely believes she's the first to ever think of the idea, and thus should be able to pull the wool over our eyes without any problem.

When informed that requests made so long after the initial transaction are ineligible for a refund, they have been known to become so abusive that the owner of the company ordered all customer service personnel to immediately discontinue such calls when the customer becomes abusive and/or threatening.

Anyway, do you think that this behavior would fall into the category of postpartum psychosis? That certainly would explain this rage-fueled mentality that until now we've only been able to explain by writing them off as lunatics, bullies and/or scam artists.

The question is whether or not they planned to attempt to get their money back prior to giving birth, as that would answer the question of whether or not they are simply scam artists who have realized that they can often have their cake and eat it too by threatening online retailers, many of whom simply give in to such uncivilized behavior. My employer stands firm on principle, insisting that such demands constitute fraud, and has even suggested that the act is criminal in nature.

What is your opinion about this? Are these women really merely suffering from a legitimate mental illness or are they simply dishonest scam artists who have figured out how to abuse the system successfully?

Phone Stalkers Do More Harm Than Good

As anyone who has ever made the mistake of signing up to receive information about online colleges and traditional universities with extensive online course offerings knows all-too-well, the ensuing harassment undertaken by the telemarketers acting on behalf of the various "institutions of higher learning" can be a major detriment to one's quality-of-life. The callers have no regard for the privacy of their victims, calling seven days a week, and numerous times each day at that.

Their goal is to get the victim to agree to attend their substandard self-proclaimed educational institute for the sole purpose of persuading the telemarketers to leave them alone.

I have been called by online universities and payment processing companies as early as 6:30 am, give or take five minutes, as late as 9:00 pm, not to mention on weekends, when for a period of several months I would receive several calls each day without exception.

I know I didn't sign up for this harassment. But how then would they get my information and what would lead them to believe I had any interest whatsoever in attending their bogus universities or switching to their payment processing service that has to rely on cold calling  in order to generate leads. This tells me that their service must not be very good if mass media plus word-of-mouth is insufficient to generate attention, and if they must resort to calling me hours before I'd otherwise wake up on a Saturday in order to inform me of their company's existence, I will continue to interpret that as their way of saying that neither their service nor their company meets my standards.

The most important lesson to take from this is that if you have an enemy (or enemies), and you'd really like to get at them good, sign them up unknowingly for information about taking college courses online and/or hiring any one of a large number of payment processing companies which all appear to use the same telemarketing service to inundate unsuspecting would-be customers with unwanted phone calls.

Small Business Directory Inadvertently Opens Door for Competition

LOS ANGELES, CA - Like most everyone else throwing their two cents into the discussion over the 2012 edition of Merchant Circle versus the community we'd all grown to know and love, I'd like to personally take this opportunity to state on record my opposition to MerchantCircle's 2012 overhaul of the site design and functionality.

Merchants who contribute content should be rewarded for their efforts, and before January of 2012 they were. Now, our blog posts aren't even featured on our company homepage, nor are our products, photos or coupons. The fact that MC has shifted focus away from those creating content and towards those paying for placement is a move that will undoubtedly upset a number of business owners in addition to myself, opening the proverbial door of opportunity for competitors to move in on the space the old MC had occupied.

Merchant Circle's 2012 overhaul has angered users, opening the door for competitors to move in.

Instead of the 2011 profiles, which largely featured a merchant's contributions on his or her own small business' homepage on the site, those pages now have more ads to competitors' pages and websites, with only reviews displayed beneath the company bio on company homepages. The category links that once appeared on my Merchant Circle company homepage are now gone, as is the Google +1 button (although it remains on some of the pages that haven't yet adopted the new design).

Many formerly free features now cost far more than fair market value based on pricing for similar services at those few companies who do charge for them.

Rather than labor for the benefit of companies with the resources to pay to be prominently featured on my Merchant Circle company homepage that doesn't even link to my recent blog posts, photos, coupons or deals, I will instead most likely be spending more time on similar sites --- alternatives to Merchant Circle --- preferably sites that won't use bait-and-switch tactics to trick users to generate loads of free content, only to see the commercial benefit of said content be taken away from them.

One such site is called StoreBoard. At StoreBoard, you have a company profile, such as the one I have already created for Egan Medical. Like Merchant Circle, companies get their own blog, and can add coupons, list products in the marketplace, post images, classifieds and even links to their company's respective site-within-a-site.

The company blogs are superior to those at MC as the option to add photographs to posts actually functions properly, meaning the photo actually appears, and all text and HTML show beneath the photo also appears on the page for each respective post. As most users of Merchant Circle who've tried to add photos to blog posts without completely coding the entire page from scratch, the photos usually don't appear, and all text/HTML appearing beneath the photo does not appear either. I once lost more than an hour's work because I forgot to independently save a copy of my MC blog post on my own computer, and lost it when I attempted to include a photo in the post, only to find that all photos and everything appearing beneath them just gets deleted on MC blogs. StoreBoard blogs also give the user superior formatting options compared to those offered by MC.

Here is an example post by Egan Medical Equipment about a new line of products (maternity supports, to be specific) which now are available for purchase through the company's online store: Egan Medical Unveils New Line of Maternity Supports.

Obviously, the site is newer and not as powerful, so the benefit of your activity there won't have the immediate and meaningful impact being featured prominently at Merchant Circle once had.


In fact, each company gets its own links page, and as long as the links don't violate the company's terms of service, users can pretty much post anything they think their customers will appreciate, be it links to products, articles, news stories or whatever else might be useful.

Like Merchant Circle, all that is displayed on a given company's homepage is their bio and contact info (including website link). However, I haven't seen any ads for competitors either while logged in or out, so if they exist they're minimal and out-of-the-way, and you won't see your hard work serve to benefit a larger competitor with a bigger advertising budget.

While we're on the topic of new competitors to the Small Business Online Directory business, one not-so-new player is making a new and significant push to add features that might lure users away from competitors such as MC. Well known, established directory site Manta has added a number of features that will definitely appeal to merchants, and which are superior to the comparable features offered by MC.
Take for example this product page, which is more like a general category page about maternity supports (basically an orthopedic support for women during pregnancy) than a singular product page. The maternity supports page was recently created for a small business profile at Manta. Observe the large photo of the product, the ability to list either a singular price for a specific item or a price range for a class or group of items. Also, observe the length of the product description, which far outpaces the amount of space given by MC for product pages, and even then there were no links to the actual product page on the merchant's website. Manta has all that and more. While I'm no profit, it would seem a logical conclusion that Manta may be soon offering merchants the opportunity to blog directly from their Manta profile, which would get Manta up-to-par in terms of everyone else in the business with regard to the amount and extent of features available to merchants willing to spend their time creating content for the site for free in exchange for a small but sometimes meaningful bit of a promotional opportunity and benefit.

Unless and until Manta and StoreBoard "pull a MerchantCircle" and revokes the most appealing features of its site for the benefit of a handful of each industry's largest and richest players, I will likely be spending as much if not more time developing Egan Medical's presence within the StoreBoard community as I will continue to spend here on Merchant Circle.

I'll also stop paying for a certain Merchant Circle paid upgrade if said upgrade (they know to which one I am referring) fails to reappear on my company profile within the next 7 days.

Anyway, I hope someone at Merchant Circle is eventually made aware of all the displeasure among business owners and their respective employees about the recent overhaul of Merchant Circle's design and functionality, and I sincerely hope the big MC can get it together and make real improvements rather than changes that prey upon small business owners as much as they help them.

Domain Name PanaxGinseng.net Sells

I am pleased to announce that PanaxGinseng.net has been purchased in a private sale that is being brokered by Sedo. The domain fetched $775 before commission.

While I personally feel that it might be worth up to $3,000, I agreed to accept the offer for a variety of reasons. These include the fact that my domain portfolio has become a little too top-heavy, the fact that I had no immediate plans to develop the domain, as well as the fact that the overhead for maintaining such a large portfolio is becoming prohibitively burdensome in this tough economy.

In the coming weeks and months, I plan to begin aggressively marketing about 200 of the names in my portfolio in hopes of trimming down on the number of domains I hold that I don't plan to develop in the near future. If you're looking to add inventory, or if I just happen to have a domain name you want, now would be a good time to submit an offer on it.

Full Story: Panax Ginseng Domain Name Has Sold

Ebay and Paypal's Nonsensical Policies

Attention online shoppers: For Heaven's sake, please STOP using Ebay and PayPal! These companies are so poorly run it is virtually impossible for an online merchant to successfully utilize their "services" (and that's being generous).

Ebay and PayPal are dead-end destinations for vendors specializing in e-commerce sales, and in the opinion of this author, both have the capacity to kill new start-up firms by draining their human resources, which must be invested entirely into waiting on hold for a customer disservice representative to hang up on them once one finally manages to get them on the phone.

To start with, PayPal has got a set of some of the stupidest rules conceivable. For example, you cannot use the same email address for more than one PayPal account. You cannot add new email addresses to an account, even though there is a link on PayPal's site claiming to do just that. Unfortunately, PayPal creates a mystery password that if you want to actually log in using the new email address, you must first successfully guess what it is. Sure, they provide a field where you can enter a new password of your own choosing, but it does not work when one tries to log in using the new email address and password.

You cannot use the same credit card with more than one PayPal account, the same goes for checking accounts. Once a credit card is associated with an account, it can never be successfully removed from that account and added to another. If you wish to set up a second PayPal account for a different purpose, you must first activate a brand-new credit card to associate with the account. This is pathetic and beyond asinine on the behalf of PayPal.

Now onto Ebay. Ebay requires that all sellers have a credit card and checking account associated with their Ebay accounts. However, Ebay provides no mechanism for actually providing them with that information. That is correct, Ebay is apparently not accepting any new sellers, as there is apparently no place on the site to enter credit card/checking account information, and the company will not allow new sellers to actually sell without providing this information Ebay won't allow you to provide.

Naturally, customer service at both of these organizations is more like a disservice.

Both companies were founded by Meg Whitman, which explains why both are so convoluted and unnecessarily complicated.